What inspires you??
to love. . . .
After all, I don't see
why I am always
asking for private,
when every year there
are miracles like white
Anne Morrow Lindbergh
This is a blog that Ava's mom posted a few days ago. Thought you might like to read it.
8 years. That’s what we’d been loosely promised. That’s what I’d been praying for, for the last 6. And for some reason, the last three weeks of Ava’s life I had totally convinced myself she’d live to be in her twenties. I’ve been battling with how, as a mom, I just didn’t know it was going to happen that day. Shouldn’t I have felt it when we woke up in the morning? Shock and grief are probably the most powerful feelings we can have other than love, and I’m trying my best to remember those are just earthly feelings. When Ava died, it was like I was reading a really good book and I got so involved I had no idea I’d reached the end until I read the last word. Complete heartbreak.
Although I don’t believe it every second of the day, and I seem to be in constant need of people reminding me, there are more books to be read and more stories to be written. I may feel empty now, but Ava’s book is right there on the shelf. When I need to remember the story, I can read it any time I want…through pictures, video, and of course you can probably guess that I’ve written every memory down.
The night Ava was born, she was a little blue so that meant an extra few seconds of her being away from my reach right away. That was the first time I’d ever experienced physical emptiness. I stayed with her for about three hours after and didn’t get to see her again until six AM the next day. It probably took two minutes for the nurses to roll Ava down the hall to my room but it felt like a lifetime. She’d lived in me for so long and I needed to feel her move. I needed to see her face. Hear her breathe. Smell her. Touch her. Every mother knows what that’s like. It’s not just a sense of pride that draws us to our newborn babies, it’s that bond that never breaks. It’s responsibility, and completion, and purpose.
As I mentioned earlier, the three weeks leading up to Ava’s death were some of the best I ever had with her. I was thankful to be able to finish up her treatment for staph at home with the help of a nurse, and not in the hospital far away from our families. She’d spent most of this year in the hospital and enough was enough. She was beaming every single day. I promise you I have never seen that little girl smile so much and for no reason at all! Everything made her happy. Everything was funny. Well, with the exception of changing her bandages. She was always a whiner at getting the tape off, and this we thought was funny because with everything in and on her body that should have been hurting, the tape removal is what made her start swinging fist and sassing. J
She was growing. Her seizures were at their most minimal. She never spit up. She cuddled me a lot and let me hold her whenever and however I pleased. Every two days, the nurse would change the wound vac bandage on her back. I was amazed…in absolute awe…at how fast she was healing. There was a small scare about the infection spreading but it seemed as if the second everyone clammed up, the problem went away. The best part of all of this was that for the first time since she was a baby, it was just me and Ava, all day long. We couldn’t go anywhere so we didn’t. Our top priority was to spend time with each other. I am so incredibly thankful that God planned it that way. I think that was his way of giving me peace just long enough to remember and truly enjoy the last few days I had with her.
I know a lot of people knew about those three weeks, and how wonderfully she was doing. I know you felt that shock right away, too. I know it’s left a lot of you with hard questions and I know you all loved her so much, so I’m going to do my best to explain how Ava became a Heavenly angel, although I’m still struggling to put pieces together myself.
On Wednesday, May 16th, Ava woke up ill with a stomach bug. It was a typical kid thing. It left her drained and a little dehydrated, but nothing serious. I probably complained too much that day about washing all the sheets and clothes. Connor was obsessed with helping her that day, which was good because I needed it. He gave her some medicine. He stood in front of her, fingers shaking at her stomach, and threatened all the tummy bugs (as if there were literal bugs wiggling around in there) to leave his sister alone, or else. Ava thought that was hilarious, and then Connor scolded her for not taking his position as doctor seriously. Those two….J There was no fever, or anything else out of the ordinary except hard seizures, but she had spit up all her meds and as Aicardi moms know sometimes that’s just an unfortunate side affect. By nighttime, she seemed fine. I pump fed her Pedialyte only, bit by bit over the course of an hour, just to help her feel better. She didn’t spit it up, so I put her to bed. The next morning while she was still laying down, she coughed and a little Pedialyte came up, but she didn’t even act bothered so I never thought it went into her lungs. The spit up was clear, which I took as a good sign. Sometimes Aicardi girls just spit up like babies do, and the color and scent of it made me believe the bug wasn’t there anymore. I sat her up in her wheel chair and we started her day. She frowned a couple of times, faces that will always haunt me now, but even then I swear I thought, My God. That is the most beautiful frown. The frown went away though. She was sleepy but that’s normal for a girl with her syndrome. Her vitals were normal. Everything was good. I prayed over and over that the bug was really gone, but continued to give her Pedialyte just to get her pepped up again. It was Dylan’s last day of school, and since I had recently been given permission to ease her out and about in small trips, I decided to take her with me to drop him off at school.
I didn’t even care that she’d just had a tummy bug the day before (sorry, parents). I knew that these kids in his class had been praying heavily for her the entire school year and some still didn’t know her. I wanted Ava to see them. Of course, she didn’t smile for anyone! She took a nap…silly girl….and woke back up when we were out in the car. The whole day went by and everything was fine other than her sleeping a lot. This could totally have been related to all the “bug issues” and seizures the day before. I gave her so many kisses. She watched cartoons in the living room with Dylan when she was awake. Connor begged her every five minutes to come upstairs and watch cartoons with him, and was heartbroken when I told him she was too tired. I can’t believe I did that. I should have carried her and the wheelchair up there. They were THE best of friends.
At around 4 P.M., Ava had a really hard seizure. I took her temp and noticed it was 103.7, the highest I’d ever seen it outside of the hospital. I called the nurse and was told what I already suspected. It could have everything to do with the seizure, and the exceptionally hard seizure could have everything to do with the dehydration, which could take days to get over. I gave her ibuprofen and waited to hear back from the nurse as she consulted the doctors and dietician. By the time she called back, Ava’s fever had gone back down to 100, and minutes after that was at 98.8. I was completely convinced it was the seizure that shot it up. Since she hadn’t been spitting up, the dietician decided it was time to get the dehydration taken care of even faster, so we increased her feeds and the feed times came in short intervals. She kept every bit of it down, but she kept getting sleepier and sleepier. I listened to her lungs, but there were no more “junky” than normal. She wasn’t coughing. She was a little pale, but it was nothing out of the ordinary for Ava even when she wasn’t feeling bad. She scared many doctors in her time with her ability to “lighten up”! I wondered if she may be coming down with pneumonia but even then, I’ve seen her with less severe pneumonia and she looked and sounded a lot worse than she did that day. I was worried, but with the fever down and the Pedialyte staying in her system I thought she just needed to rest. Since it was after hours, I told Drew if the fever came back I would take her straight to the ER. I wasn’t even thinking we’d have to stay there over night. I figured it’d be a quick breathing treatment, adjustment of antibiotics and we’d be on our way. Nothing major. Totalroutine.
Around 6:45 or 7, I noticed Ava making funny faces. I picked her up and she threw up all over me. I won’t tell about the next fifteen minutes in great detail, but that’s when Ava’s body decided to let her go. I’d never seen anyone dying so I honestly had no idea that was happening. I knew it was serious. I knew that even though he was doing everything right, I didn’t feel like the CPR Drew was doing was changing the way her body looked and I couldn’t understand why. I believe now she was gone before we could even lay her down for CPR. I knew it seemed to take an eternity for the ambulance to get there even though I later found out it was minutes. I guess the ENT’s knew right away that she had left us. I tried to follow her into the ambulance but they wouldn’t let me go. Drew and I beat them to the hospital and I thought that was so strange. I stood in the middle of the waiting room waiting and waiting and waiting. Everyone was staring at me and I hated them for it. A receptionist walked up to me and said, “How old is your little girl?” I didn’t remember even telling her it was a little girl I had on the way and I wanted to know how she knew. The ambulance finally got there and when I took one step forward the same receptionist grabbed my hand and told me to follow her. She put me in a family consultation room with Drew. The only time I’d ever been in one was right before her diagnosis, when a neurologist was asking questions to help find an explanation for her seizures. I thought they put us there to get us away from the eyes of everyone else. I thought a doctor would come in and ask questions about Ava’s syndrome, so they could figure out how to treat her best. One by one more people came in. Khiron and Sara-Claire. My parents. I had to answer insurance questions. I was frustrated that I couldn’t know what was going on with my daughter but I thought if the staff is so calm then everything is going to be ok.
The ER doctor came in next. I couldn’t look at him. He hesitated and I knew then. He said, “I’m so sorry but she was already dead when she got here.”
I don’t remember a lot during the time after that. I do remember when the coroner came in and told me she felt like Ava had a seizure and aspirated. I could NOT believe how quickly that killed her. Do you know how many times she’s aspirated? It happened to her like any other kid falls down and scrapes his knees. We’ve always had time to get it out of her lungs by suction, or even her just cough it up on her own.
It was a while before we were able to go back and see her. I couldn’t get over how beautiful she looked. She was so distressed when I’d looked at her last, and yet there she was, mouth open like she always did when she snored, frog legs scrunched up. She looked so perfect and so normal. She even looked less blue. I kissed her and I held her hands. She felt different but she was still soft. She was so incredibly beautiful. Dylan cried for an hour and must have said “This can’t be real” a hundred times. It wasn’t real. Not to any of us. Everyone in that room was so hurt. Everyone looked so sad and so shocked. Everyone felt an angel leave the earth.
Dylan surprised me that night. It was Connor who was her other half, but Dylan aged so much in just a few minutes. He wouldn’t leave her body. He kissed her forehead and brushed her hair. He had questions about what was done to try and save her, what happened, what we were supposed to do now. He stayed with her until she was taken away from the hospital, and then he stayed on a bench in the parking lot right next to me. Drew told him it was time to get up and go spend the night with his grandparents. He told him ok, but didn’t move. I’m not even sure how they got him out away from there finally. I don’t remember. Later, I found out that when Connor had been told Ava went to Armor (heaven) but this time she wouldn’t be coming back, he said very matter-of-factly, “I know! She forgot to take her body this time.” Thank you, Jesus, for giving them Armor while she was still alive. What better way for a child to cope with the death of a sister. I am so happy I still have those two little boys and I thank God I get to see them live out another day.
That night I experienced grief in full force. The way it feels to lose a child is probably the closest thing to physical death we can experience. I was paralyzed. I thought I would never be able to walk again. Eat again. Sleep again. Talk again. Breathe again. I thought for sure if I closed my eyes for too long, my heart would stop, too. My whole body ached so much that I felt if I moved it would totally shatter. I just knew I would never leave my house. I would never drive. I would never do laundry. Pack lunches. Make a to-do list. I would never want to do anything ever again. I started to want to close my eyes and it all be over with, but grief wouldn’t even let me do that. Or maybe that was God.
I didn’t sleep that for a few nights, and I didn’t eat for a couple of days, but eventually I did. Not because I wanted to, but because I had to. It’s amazing how a broken heart will tell us we don’t want and need things that our physical bodies demand us to have. Life has to go on if God commands it.
I’m not going to lie, I still feel completely broken even though now I know she is completely healed. Drew and I are grieving and taking care of each other all at the same time. That’s a hard thing to do. I know it probably won’t be this way, but I feel like I will need counseling for the next twenty years. I will live every day of the rest of my life waiting to leave this earth and be with her again. I will live but for every second some of my heart will be missing. I will wonder all the days of my life what it will feel like when our souls hug. Will it feel as warm as it did the first moments after she was born? Will it be as warm as it was a few days ago when she nuzzled her little face into my neck? Will she finally be able to tell me what she’s thinking and what she feels? Will we be able to walk together hand in hand to the feet of our Father and thank him for creating a mommy/daughter team between us? And for making it last as long as it did?
I struggled for a few days with why I didn’t see it coming. I’ve had a pretty good instinct about her health for all of her life, but that one day I just didn’t know. I hated myself for not just taking to the ER anyway. I kept it bottled up for two days and then the day we buried her, screamed at my husband how angry I was that I wasn’t a good enough mother to just KNOW. I’m so ashamed to say, I took it as a slap in the face from God. She was my biggest responsibility. Was He telling me I couldn’t handle her anymore? Had I not worked hard enough? The last six years of my life had been filled with as much heartache and frustration as it was happiness, but did I not thank Him enough for giving her to me? I was horrified to think of life without her. We didn’t get to finish our plans, and it wasn’t fair. She never got the new pink wheelchair we ordered for her 6th birthday. Her hair was inches away from finally being able to donate to Locks of Love. Her front tooth was breaking through the gum. She was hours away from having the wound vac removed for good. I was so wrapped up in those inappropriate feelings that I didn’t even see that my husband was struggling with the same thing. He did the CPR on her because I was too afraid and too shocked to. I saw him as a hero, and he felt like a failure. We were so incredibly broken, sad, and angry that night.
I’ve had time to really pray about it, and God please forgive me for when my prayers turned into angry screams. I can’t promise that I feel this way every second of the day, but for the most part, I’m able to realize that this wasn’t about us at all. Ava was hurting. She was so very sick, even when she didn’t act like it. Her body couldn’t do it anymore and her soul didn’t deserve to live on this earth in that kind of pain. God didn’t take her…He saved her. He wasn’t punishing me…He was giving me peace of mind knowing she lives in the most perfect existence ever now. Even if I never find the words to explain it, even if I don’t always remember, I get it now. We were all sent here with a job to do, and she worked over time. My sweet little baby gets to rest now. She gets to play. She gets to live! I can make a choice to be angry about it, or I can make a choice to praise God for giving her a break and for making me strong enough to cope with her absence. I did not like who I was before Ava. I was shallow and with out direction. She changed me so I could later fulfill my purpose. Wow.
And speaking of Ava’s purpose, in the last few days I’ve been totally overwhelmed at what people are saying about her. I knew she made and impact while she was alive, but I didn’t really KNOW until after she passed. There were hundreds and hundreds of people at her wake. Her little guestbook capped out at 325 people, but I know of so many more who came and didn’t have room to sign. Most everyone told me a story of how she had changed their life. Ava showed mothers how to love more unconditionally. She showed children how to be more understanding. She showed me my purpose and taught me what endurance means. What an awesome responsibility for a child to be given. My Facebook and blog blew up with sweet words. Drew, Khiron, Sara-Claire and myself probably received a hundred calls and texts. It was love being sent world wide. I’m the proudest mommy, ever.
Everyone keeps asking me what I need, but I just need Ava. My earthly body, my earthly mindset will probably always feel as it I can’t function 100 percent without Ava around but hey…fake it til you make it (to heaven, that is.) If Ava were here, I wouldn’t have this hurt, but if Ava were here, she would hurt. If Ava were here, we would wake up in the mornings together. I would mix her medicine. Prepare her meal. Change her diaper. Dress her. Kiss her. Love her. But Ava would hurt. If her death was a trade-off, my pain for hers, how can I not thank God for relieving her?
I will tell you first hand this is not something parents are equipped to experience without faith in or at least some understanding of God. He is now my direct connection with her. She is with Him every day, and He is with me. My faith in God is my only promise that I will be with my daughter again one day. Please think about that. It applies to all of us.
It was such a beautiful day for her funeral. Have you noticed how bright it’s been around here every day since her death? My Little Sunshine is in the sky.
Dylan and Connor took a little trip to the beach with family. I know they needed the break. Connor is very worried she will be lonely without him and he will be lonely without her. I can’t tell you how many times he’s grown frustrated in the last few days because he didn’t get to go to heaven, too. We put Ava’s favorite stuffed poodle in the casket with her. It seemed appropriate. Connor looked sad when he saw it. He let me know right away that “her body that doesn’t move anymore” wouldn’t need it, but he did. He took it out and carried it with him at the funeral. On the way home, he snuggled up to it and said, “You miss Abuh too, don’t you pink poodle?” Poor, sweet little boy. But imagine what kind of man he will grow up to be, having learned to love like that so early.
Drew and I drove to New Orleans yesterday. I didn’t want to be in the house, but I didn’t want to risk seeing someone I knew and having to talk about it. I just wasn’t ready. We’d been promising Ava and the boys we would take them for a day trip on Mother’s Day, but Ava wasn’t feeling up to it. I know she would have loved it. We ate po-boys on the street and beignets at Café Du Monde. We walked along the river and took our shoes off on a bench in Jackson Square. We walked around the city and felt the warmth of the sun full force. We spoke of and thought of Ava, but I didn’t cry the entire time, well, not until on the way home…but it’s just a one day at a time thing.
Thank you for loving my little Abuh so much. Wasn’t she something?Posted by Paige Walters at 11:43 AM
Are you a list maker?
I am a list maker from way back. I make grocery list, packing list, to-do list and list to organize my list!
It just makes me feel such a sense of accomplishment to draw a line through the finished task. (and 'Yes' it should be a line through it, not a check mark beside it.........checks do not say 'FINISHED' whereas a line through it does)
Someone told me once that you should only include three things on a list because that's all we can effectively handle in one day.............
and some days I do this and it works great.
And those days need more of a list or maybe I need more 'atta-boys' or 'you-go-girls'.
So on those days my list is long and filled with time consuming tasks and quickies.
Today my list looked like this:
Take out trash
Paint trim in bathroom
Make appointment for yearly checkup
Try to destroy dreaded Nandina bush that is covering up my
beautiful hydrangea bushes
Buy paint for kitchen cabinet
YES! I realize that it seems silly to write down some of my task, i.e. 'take out trash', but when I draw that red line through the first chore,
to do more.
It's 1:27 and I've completed 6 out of 9 (and some of the bad ones too).
Also, you might like to give me a small round of applause because, if you notice, "blog" was not on my list.......but I did it!
So, dear Reader, what about you? Are you a list maker?
If you are....ya got good company (see below)
"As you danced in the light with joy, love lifted you. As you brushed against this world so gently, you lifted us." T.C. Ring
"The most beautiful people we have known are those who have
and have found their way out of the depths.
These persons have an appreciation, a sensitivity, and
an understanding of life that fills them with
compassion, gentleness, and a deep loving concern.
Beautiful people do not just happen"
Elizabeth Kohler Roe
Taking a leap!
Some fun facts about women who took a chance - Martha Stewart was 37 when she started her first catering business, Paula Deen was 42, and Mary Kay Ash was 45 when she began her cosmetics line. A common theme here - it's never too late to follow a dream. What's your dream? Are you ready to take a leap toward it? Happy Tuesday all ♥
Thanks to Bees Knees for these facts.
It's the end of the day and you hear, "How was your day, Dear?" (or Babe, or Honey, or Darling or any such endearment, because at the end of the day, there should be an endearment).
How do you answer?
How many times have you asked the 'how was your day question' and heard, "It was fantastic"?
********************************** I'm giving you time to think.
Why are we so much more likely to say the bad stuff?
Why do we find it easier to tell the low points of our day than the high points?
Why are we so rarely positive?
I read one time that if we all went to a party and left our problems in a box by the door, knowing that we had to pick up a problem as we left, that we would almost always choose our own............
So maybe our life is really not that bad, huh?
I would LOVE a comment
on why you think we do this.....because
I don't want to do it anymore.
Care to join me??
"What you see before you, my
friend, is the result of a
lifetime of chocolate.”
I think a lifetime full of friends, last-minutes,
joy, spontaneity, family, work, drama, tears,
I-can't-take-it-anymores, tired feet,
crazy-as-a-fruitcake, hiccups, stress, baby laughter
and all the rest just
HAS TO INCLUDE CHOCOLATE.
Katharine was pretty smart, huh?
Ladies, by the time we're forty we can do our makeup in our sleep. However, that's exactly why it's time to do the make-up wake-up!
Sandy Linter, co-author of "The Makeup Wakeup", says wearing the same makeup for four decades is a beauty DON'T."Women of a certain age that are still doing their makeup the way they did it when they were twenty year olds. It doesn't work anymore!" she says.
Here are some of Sandy's tips for updating your look:
Lesson One: Use Bronzer Year Round
Author, "The Makeup Wakeup"
Special thanks to Neiman Marcus and Lancome:
I know you think that your dad is the best but........
because mine is.
He may not know EVERYTHING about everything but he
knows something about it.
In the past few years I've called him about:
my car running hot (just today)
when to plant my garden
what bird makes a certain sound
what size sandpaper I need for a sander
how much to ask for items at my garage sale
which way was 'gee' and 'haw' (don't ask)
how to get rid of ant beds
the best way to strip stain from cabinets
how to fix a water leak in pvc
how to patch a hole in stucco
how to re-wire a lamp
how to tighten a rickety chair
how to make biscuits (yep, you read it right)
what to do about Lulu's drain problem
and the list goes on and on
And never one time did he not know the answer.
Don Geddie is not just our father. He is SO much more! And we aren’t just being prejudice because anyone that is lucky enough to know him, would agree. However in order to be this amazing father he also has to be a:
Christian – Deacon: He is first and foremost a Godly, God-loving man. (“and you always wear your best clothes to church, because you always put your best on for the Lord”, according to Gertie Geddie, his mother.)
Mississippian: born in Jones County, graduated from Central High in Jackson, attended Hinds Junior College and he doesn't understand why anyone would want to live anywhere else.
Gentleman Farmer: He always has some strange collection of cows, goats, pigs, chickens, and whatever else someone gives him. Needless to say no one has to be persuaded to visit Papa. His house is kind of like a kid’s personal petting zoo. As his children, we were always really excited when he came home from working 7 and 7 off shore. However, to be honest, this excitement was not just because we loved it when he was home, it was also in hopes that he would show up our next addition to the “zoo". One time, he brought us each a rabbit. Another time, he brought us all ducks. One of our favorite times, he brought us home a goat, Billy, that thought it was a dog.
Bee Charmer: He is called on all over Pike County to come “Get this swarm of bees!” a talent he learned from his mother and also taught to his daughter.
Fixer of all broken things (“McGuyverisms”): Like all good daddies, we cannot think of anything he has not been able to fix or figure out a way to ‘make it do’. Whether it is a little girl’s doll, a leg on an antique table, or our favorite ‘new’ car, he can make them all wonderful again.
Scavenger: He will take anybody’s ‘good junk’, often found on the side of the road, and keep it until he finds the perfect use for it. Maybe this is why, when it comes to people, he always thinks the best of them.
Speaker: If you tied his hands by his side, he would be rendered speechless, but give him a microphone and a free hand to emphasize with and he is the master of ceremonies ***don’t forget to give him a time limit***
Teacher: Don always told his oldest grandchild, Hunter, “I’m going to college with you when you go so that we can finish together.” Don did go back to college, but this time as a teacher with the work force training program through Southwest Community College. We should never have doubted that he would be a good teacher. Afterall, he and our mom taught us everything we needed to know and loved us for every second.
Worked in the oilfield 43 years with an 8 year hiatus– He left a job he loved, with Exxon, because he felt he was missing half of his children’s life. What a wonderful gift he gave to his children.. himself. He opened a family business so he could be home for all the horse shows, recitals, ball games, beauty pageants and, of course, church.
This doesn’t even come close to summing up our father’s life.
He is without a doubt
He is our ultimate hero!!
April Darlin' mentioned to him, one day, that she knew he
would be so glad when all the kids were out of the house and he wouldn’t have to worry anymore, Papa said, “ I’ll never quit being your father. No matter how old you get, I will always love you and I will always worry about you.”
That's our Daddy and our Papa!!
There's something like a line of gold thread running through a man's words when he talks to his daughter, and gradually over the years it gets to be long enough for you to pick up in your hands and weave into a cloth that feels like love itself."
~John Gregory Brown, Decorations in a Ruined Cemetery, 1994